I spent a recent Saturday in Los Angeles, pedaling for a cure for Nephrotic Syndrome. It was worth the several hours spent in ridiculous traffic (on the way home), knowing that raising money for this orphan disease will not only help my friend's granddaughter, but will help thousands of others. Orphan diseases do not get the same funding as diseases like cancer because so few people have them. The Nephcure Foundation hopes to raise enough money to help find new treatments and improve the quality of life for those with this disease.
Fran's daughter Kristi organized the fundraiser after her daughter was diagnosed with the disease several months ago. The community really came together to help Nephcure Foundation, in part due to the fabulous planning of Kristi and her friends. The event was held at Flywheel, a new spinning studio on Larchmont in Los Angeles. Flywheel is a new concept in spinning, as it combines an incredible cardio workout with upper body conditioning. The sweat was pouring, the endorphins were flying, and the music was blasting. Everyone in the class, all 46 of us, were riding for a cause, and everyone put their heart into it. I came out of the class spent, but happy. Lots of money was raised, and everyone, spinners and non spinners alike, enjoyed the day.
The spinning was followed by a delicious lunch of sub sandwiches, fruit and healthy salads. Wonderful juice and vitamin water drinks completed the meal. It feels so good to help others in any way you can. Some people donated money, some did the flywheel class, others did both. Contributing to the fundraiser in my small way made me feel good. Anytime there's a fundraiser that combines a good cause with a great activity, caring people and of course food, you have a win/win/win/win situation. This fundraiser certainly was that.
FYI: only about 350 doctors worldwide work on finding a cure for this disease. Not much progress has been made in treatment of nephrotic syndrome in the past half century, but there is some good news. In the past 10 years researchers have made significant progress, and within the next 5 years, researchers hope to have new and improved treatments.
I spent a recent Saturday in Los Angeles, pedaling for a cure for Nephrotic Syndrome. It was worth the several hours spent in ridiculous traffic (on the way home), knowing that raising money for this orphan disease will not only help my friend's granddaughter, but will help thousands of others. Orphan diseases do not get the same funding as diseases like cancer because so few people have them. The Nephcure Foundation hopes to raise enough money to help find new treatments and improve the quality of life for those with this disease.
Fran's daughter Kristi organized the fundraiser after her daughter was diagnosed with the disease several months ago. The community really came together to help Nephcure Foundation, in part due to the fabulous planning of Kristi and her friends. The event was held at Flywheel, a new spinning studio on Larchmont in Los Angeles. Flywheel is a new concept in spinning, as it combines an incredible cardio workout with upper body conditioning. The sweat was pouring, the endorphins were flying, and the music was blasting. Everyone in the class, all 46 of us, were riding for a cause, and everyone put their heart into it. I came out of the class spent, but happy. Lots of money was raised, and everyone, spinners and non spinners alike, enjoyed the day.
The spinning was followed by a delicious lunch of sub sandwiches, fruit and healthy salads. Wonderful juice and vitamin water drinks completed the meal. It feels so good to help others in any way you can. Some people donated money, some did the flywheel class, others did both. Contributing to the fundraiser in my small way made me feel good. Anytime there's a fundraiser that combines a good cause with a great activity, caring people and of course food, you have a win/win/win/win situation. This fundraiser certainly was that.
FYI: only about 350 doctors worldwide work on finding a cure for this disease. Not much progress has been made in treatment of nephrotic syndrome in the past half century, but there is some good news. In the past 10 years researchers have made significant progress, and within the next 5 years, researchers hope to have new and improved treatments.
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